International Journal of Nursing Studies
Volume 44, Issue 7 , Pages 1261-1269 , September 2007

Internet communities for recruitment of cancer patients into an internet survey: A discussion paper

  • Eun-Ok Im

      Affiliations

    • School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA
    • Corresponding Author InformationCorresponding author. Tel.: +15124717971; fax: +15124713688.
  • ,
  • Wonshik Chee

      Affiliations

    • Department of Mechanical Engineering, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA
  • ,
  • Hsiu-Min Tsai

      Affiliations

    • Chang Gung Institute of Technology, Taiwan
  • ,
  • Melinda Bender

      Affiliations

    • School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA
  • ,
  • Hyun Ju Lim

      Affiliations

    • School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA

Received 23 December 2005 ,Revised 16 June 2006 ,Accepted 13 July 2006.

References 

  1. Baumeister R, Leary M. The need to belong: desire for interpersonal attachments as a fundamental human motivation. Psychological Bulletin. 1995;117(3):497–529
  2. Biermann J, Golladay G, Greenfield M, Baker L. Evaluation of cancer information on the Internet. Cancer. 1999;86(3):381–390
  3. Carmichael B. Using the Internet for clinical research. Physician Assistant. 2003;27(5):29–34
  4. Clark, S., 2004. Back to basics: meta tags. Available at: 〈http://www.webdeveloper.com/html/html_metatags.html〉 (accessed September 3).
  5. ComputersScope L. 2002. NUA Internet Surveys. Available at: 〈http://www.nua.ie/surveys/〉 (accessed February 3).
  6. Fernsler J, Manchester L. Evaluation of a computer-based cancer support network. Cancer Practice. 1997;5(1):46–51
  7. Finfgeld D. Therapeutic groups online: the good, the bad, and the unknown. Issues in Mental Health Nursing. 2000;21(3):241–255
  8. Finke, L., 2004. Women: lost in cyberspace? Available at: 〈http://www.enhanced-learning.org/prox/papaer5.htm〉 (accessed September 3).
  9. Frankel, M., Siang, S., 2001. Ethical and legal aspects of human subjects research on the Internet. Available at: 〈http://www.aaas.org/spp/dspp/sfrl/projects/intres/report.pdf〉 (accessed July 1, 2001).
  10. Gudelunas D. Online personal ads: community and sex, virtually. Journal of Homosexuality. 2005;49(1):1–33
  11. Hagel, J., Armstrong, A., 1997. Net Gain: Expanding Markets Through Virtual Communities. Boston, MA.
  12. Han H, Belcher A. Computer-mediated support group use among parents of children with cancer—an exploratory study. Computers in Nursing. 2001;19(1):27–33
  13. HispanicBusiness.com. 2002. Study: Hispanic Internet use reaches 50 percent. Available at: 〈http://www.hispanicbusiness.com/news/newsbyid.asp?id=6135〉 (Accessed February 3).
  14. Im E, Chee W. Recruitment of research participants through the Internet. Computers Informatics Nursing. 2004;22(5):289–297
  15. Im E, Chee W, Tsai H, Lin L, Cheng C. Internet cancer support groups: a feminist analysis. Cancer Nursing. 2005;28(1):1–7
  16. Jones R, Pitt N. Health surveys in the workplace: comparison of postal, e-mail and world wide web methods. Occupational Medicine. 1999;49(8):556–558
  17. Kalichman SC, Cherry C, Cain D, Pope H, Kalichman M. Psychosocial and behavioral correlates of seeking sex partners on the Internet among HIV-positive men. Annals Behavioural Medicine. 2005;30(3):243–250
  18. Kendall L. ‘Oh No! I’m a Nerd!’ Hegemonic masculinity on an online forum. Gender and Society. 2000;14(2):256–274
  19. Klemm P, Hardie T. Depression in internet and face-to-face cancer support groups: a pilot study. Oncology Nursing Forum. 2002;29(4):E45–E47
  20. Klemm P, Reppert K, Visich L. A nontraditional cancer support group: the Internet. Computers in Nursing. 1998;16(1):31–36
  21. Klemm P, Hurst M, Dearholt S, Trone S. Gender differences on Internet cancer support groups. Computers in Nursing. 1999;17(2):65–72
  22. Klemm P, Bunnell D, Cullen M, Soneji R, Gibbons P, Holecek A. Online cancer support groups: a review of the research literature. Computers in Nursing. 2003;21(3):136–142
  23. Kraut, R., Mukhopadhyay, T., Szezypula, J., Kiesler, S., Scherlis, W., 1998. Communication and information: alternative uses of the Internet in households. Paper presented at CHI 98. Human Factors in Computing Systems. CHI 98 Conference Proceedings. ACM, New York, NY, USA.
  24. Kuusi M, Nuorti J, Maunula L, Von Bonsdorff C, Miettinen I, Pesonen H. Internet use and epidemiologic investigation of gastroenteritis outbreak. Emerging Infectious Diseases. 2004;10(3):447–450
  25. Kypri K. Assessment of nonresponse bias in an internet survey of alcohol use. Alcoholism Clinical Experimental Research. 2004;28(4):630–634
  26. LaSusa, T., 2004. Meta tags: No more hide and seek. Available at: 〈http://www.olg.com/jmerrick〉 (accessed September 3, 2004).
  27. Latthe P, Latthe M, Khan K. Quality of information on female sterilisation on the Internet. Journal Obstetrics Gynaecology. 2000;20(2):167–170
  28. Lawrence T. Power and resources in an organizational community. Academy Management Proceedings. 1995;251–255
  29. Laws, S., 2005. SPAM Laws. Available at: 〈http://www.spamlaws.com/state/summary.html〉 (Accessed June 8).
  30. Leece P, Bhandari M, Sprague S, et al. Internet versus mailed questionnaires: a randomized comparison (2). Journal Medical Internet Research. 2004;6(3):e30
  31. McGee R, Kypri K. Alcohol-related problems experienced by university students in New Zealand. Australian New Zealand Journal of Public Health. 2004;28(4):321–323
  32. McKenna K, Bargh J. Causes and consequences of social interaction on the internet: a conceptual framework. Media Psychology. 2000;1(3):249–269
  33. McKenna K, Green A. Virtual group dynamics. Group Dynamics. 2002;6(1):116–127
  34. Rothaermela F, Sugiyamab S. Virtual Internet communities and commercial success: individual and community-level theory grounded in the atypical case of TimeZone.com. Journal of Management. 2001;27(3):297–312
  35. Schrock K. Producing information consumers: critical evaluation and critical thinking. Book Report. 1999;17(4):47–49
  36. Sciadas G. Unveiling the Digital Divide. Ontario, Canada: The Minister Responsible for Statistics Canada; 2002;
  37. Sharf B. Communicating breast cancer on-line: support and empowerment on the Internet. Women Health. 1997;26(1):65–84
  38. Sixsmith J, Boneham M, Goldring J. Accessing the community: gaining insider perspectives from the outside. Qualitative Health Research. 2003;13(4):578–589
  39. Smith M, Kollock P. In:  Smith MA,  Kollock P editor. Communities in Cyberspace. London, New York: Routledge; 1999;
  40. Stone B, Weil D. Soaking in spam. Newsweek. 2003;142:66
  41. Sullivan, D., 2004a. Death of a meta tag. Search Engine Watch. Available at: 〈http://searchenginewatch.com/sereport/print.php/34721_2165061〉 (accessed September 3, 2004).
  42. Sullivan, D., 2004b. Lawsuit filed over search and gambling ads. Search Engine Watch. Available at: 〈http://searchenginewatch.com/searchday/print.php/34711_3397101〉 (accessed September 3).
  43. Tan B, Foo S, Hui SC. Web information monitoring: an analysis of web page updates. Online Information Review. 2001;25(1):6–18
  44. Tesser A, Martin L, Cornell D. The psychology of action. In:  Bargh IPMGJA editors. On the Substitutability of Self-protective Mechanisms. New York: Gilford; 1996;
  45. Tsai, H., Lin, L., Chee, W., Im, E., 2004. An Analysis of ethnic-specific Internet cancer support group in the US. In: Proceedings of the Medinfo 2004 on Building High Performance Health Organizations.
  46. VanDenKerkhof E, Parlow J, Goldstein D, Milne B. In Canada, anesthesiologists are less likely to respond to an electronic, compared to a paper questionnaire. Canadian Journal of Anaesthesia. 2004;51(5):449–454
  47. Weber R. Basic Content Analysis. Newbury Park (CA): SAGE; 1990;
  48. Wei S, Metz J, Coyle C, et al. Recruitment of patients into an Internet-based clinical trials database: the experience of OncoLink and the National Colorectal Cancer Research Alliance. Journal of Clinical Oncology. 2004;22(23):4730–4736

PII: S0020-7489(06)00219-7

doi: 10.1016/j.ijnurstu.2006.07.003

International Journal of Nursing Studies
Volume 44, Issue 7 , Pages 1261-1269 , September 2007