International Journal of Nursing Studies
Volume 44, Issue 7 , Pages 1261-1269, September 2007

Internet communities for recruitment of cancer patients into an internet survey: A discussion paper

  • Eun-Ok Im

      Affiliations

    • School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA
    • Corresponding Author InformationCorresponding author. Tel.: +15124717971; fax: +15124713688.
    • ,
  • Wonshik Chee

      Affiliations

    • Department of Mechanical Engineering, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA
    • ,
  • Hsiu-Min Tsai

      Affiliations

    • Chang Gung Institute of Technology, Taiwan
    • ,
  • Melinda Bender

      Affiliations

    • School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA
    • ,
  • Hyun Ju Lim

      Affiliations

    • School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA

Received 23 December 2005; received in revised form 16 June 2006; accepted 13 July 2006.

Abstract 

The purpose of this paper is to provide future directions for the usage of Internet communities (ICs) for recruitment of research participants based on issues raised in an Internet survey among 132 cancer patients. About 317 general and 233 ethnic-specific Internet Cancer Support Groups and 1588 ethnic-specific ICs were contacted to recruit cancer patients. Research staff recorded issues and wrote memos during the recruitment process. The written memos and records were later analyzed using content analysis. The issues included: (a) difficulty in identifying appropriate ICs and potential participants, (b) meta-tags, (c) dominant white and women groups, (d) dynamics inside ICs, (e) difficulty in trust building, and (f) potential selection bias. The findings suggest that researchers thoroughly review the ICs’ information, be recognizant of potential gender and ethnic issues and current trends in Internet interaction, and consider potential selection bias.

Keywords: Internet Communities, Cancer Patients, Recruitment, Internet Research

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PII: S0020-7489(06)00219-7

doi:10.1016/j.ijnurstu.2006.07.003

International Journal of Nursing Studies
Volume 44, Issue 7 , Pages 1261-1269, September 2007

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